Jul. 13.

Do Away With the Medication!

Daniel is progressing in every area! I wrote my last post telling you that he is toilet trained. Well things have moved along from there even. I was bathing the two boys on Friday night. Daniel, completely unprompted, suddenly announced he thought he needed a poo. He had not been medicated. Daniel never does a poo without being medicated due to his paralysed gut. I always have to medicate him to get him to have a motion the next day. So I quickly plucked Daniel out of the bath and sat him on the toilet. I was convinced nothing would happen. But he sat there. And he pushed a little. And then he did a poo. A perfectly normal formed poo!! All by himself!! No meds. No help. No encouragement needed. He was so pleased with himself. I was absolutely thrilled. This is huge news. For anybody that knows Daniel you will appreciate that this really is newsworthy. Daniel has been on very strong meds now for a few years, and he is only six! He is due a check up appointment with the Constipation Nurse Specialist in August. She will be absolutely thrilled to hear this news. Last time I saw her he wasn’t even sitting on the toilet with his pants up. Let alone using the toilet for the function it is intended for. She won’t recognise us when we show up. I shall be able to tell her that Daniel uses the toilet just like any other six year old now. He wears pants all day without accidents. And although I put him in Huggies DryNites at night, he nearly always is dry in the morning too. So I think we shall be doing away with DryNites very soon. That will work wonders for Daniel’s confidence and self esteem and dignity, and it will save us many pennies too! Because the local PCT no longer fund nappies for incontinent children with special needs.

Whilst we on the subject of achievements. I went for Daniel’s Parent Consultation at school the other day too. He is doing amazingly well. His reading and writing skills are excellent for his age. His pen control has much improved. He is doing brilliantly at maths. He is having less meltdowns in class and is coping better with change and with transitions. Altogether Daniel is doing brilliantly and we are very proud parents. The school obviously should take a large amount of credit for this as they are fantastic. I have met Daniel’s new teacher for September. She seems very pleasant. She is very young and newly qualified so I hope she has lots of fresh and exciting ideas. We shall see.

Only one more full week at school till Summer Hols. Let us see what the next few days will bring.

Sally xx

Jun. 30.

Daniel is Toilet Trained !!

I am absolutely delighted to announce that Daniel is toilet trained! And before he hits his 7th birthday. We are so so proud of him. He has done brilliantly. It all began about three weeks ago when we had some really hot weather. The boys wanted to play in the paddling pool and obviously Daniel couldn’t go in there with a DryNite on so I put him in big boy pants. He went for a wee before he went to play. Then he did another wee when he came indoors. Then another. And he stayed dry all day. So I tried it the next day. The same results. So I sent him to school in pants! I sent him with a spare pair of pants and trousers, but to date, we have not used them at all yet. He has stayed dry every day at school. And the best part … He is doing his poos on the toilet too! This is such a huge achievement for little Daniel as he still has to be medicated to go to the toilet as he has a paralysed gut, and the meds give him the urge to go immediately so he has very little time to get to a toilet. But he has been achieving this. He has been doing his poos on toilet for last two weeks successfully. We are absolutely thrilled. And when I get Daniel up in the mornings, he is more often than not, dry. This means that I think we will be able to do away with the DryNites completely over next month or two. What a change. He is still not sleeping. But he is continent. So we regress in one area but make huge strides in others. I have every confidence that we shall get the sleeping under control at some point soon too. Daniel is just growing up and developing so well at the moment. I just have to share his success stories. I hope you all agree that this is huge progress and that he deserves a good pat on the back! Well done Daniel!!

Sally xx